As the U.S. population continues to age, the caregiving burden will only continue to increase. At some point in their lives, many individuals will take on the role of caring for friends, family members, or others. For some, this may be in a professional capacity, and for others, an act of love. Launched in partnership with the film, Caregiver: A Love Story, this initiative will raise awareness, provide resources, and most importantly, sound a call to action for a growing public health issue — the importance of caring for the caregiver.
Caregiver: A Love Story
From 2020-2021, AMWA hosted a one-hour CME/CE Program (film + lecture) for physicians, nurses, and social workers. Learn how you can screen the film at your institution or hospital.
Award-winning film (Best Short Documentary, SF Jewish Film Festival 2020) by Dr. Jessica Zitter, (author of Extreme Measures: Finding a Better Path to the End of Life*). “Caregiver: A Love Story highlights an essential, yet largely unseen workforce–the family caregivers of America…When 59-year-old Bambi decides to forgo further treatment for her cancer and die at home her husband Rick leaves his job to beome her primary caregiver–a role for which he has no experience and little support.” Learn more about the film.
Caregiver: A Love Story – Trailer from Jessica Zitter on Vimeo.
National Family Caregivers Month 2020
AMWA screening and discussion with Dr. Jessica Zitter
National Family Caregivers Month, November 2020
Caregiver: A Love Story
Event Supporters & Donors
Gold Level
Dr. Shahnaz Fatteh
Bronze Level
Dr. Karen Jerome
Dr. Laurel Waters & Jeanne Robertson
Drs. Eliza & Doug Chin
Friend
Dawn Wyllie, MD, MPH
Molly Mccormick
Dr. Julianne Dean
Amanda Coggin
Ally
Ellen Singer
Constance U. Battle, MD
Eveline Wu MFT
Kolby Miller
Dr. Theresa Rohr-Kirchgraber
Dr. Ora Pescovitz
Doug Mosher & Carla Din
Resources and Services
General Resources
General
Administration for Community Living
American Health Care Association – National Center for Assisted Living
ARCH National Respite Network and Resource Center
Caregiver Media Group – General information, magazine, resources, conference, newsletters
Caregiver Stress and Burnout (Help Guide)
National Academy of Elder Law Attorneys
National Adult Day Services Association
National Alliance for Caregiving
National Association of Home Builders- Certified Aging in Place Specialists
RAND Corporation – Caregiving Initiative
Medicare Resources
Medicare Resources
Nursing Home Compare (Medicare)
Home Health Compare (Medicare)
Hospice Compare (Medicare)
Nursing Home Compare (Medicare)
Medicare Information for Caregivers
Medicare Overview for Caregivers
Caregiver: Guide To Keeping Seniors Busy While Social Distancing During Covid-19
Military Resources
Military Resources
Blue Star Caregivers (Caregivers: Helping Strong Families be Even Stronger)
Easter Seals: Military & Veteran Caregivers
Elizabeth Dole Foundation (Caring for Military Families)
Getting to Know Military Caregivers and Their Needs (RAND Solution)
Military Caregiver Support Resources (Caregivers Resources)
Military OneSource: Support for Military Personnel & Families (Part of Department of Defense’s Network of Support for the Military Community)
Red Cross: Military and Veteran Caregiver Network
VA Caregiver Support (U.S. Department of Veterans Affairs)
VA Family Caregiver Program (Military.com)
VA Geriatrics and Extended Care (U.S. Department of Veterans Affairs)
Benefits and Funding
Benefits and Funding
PACE (Programs for All-Inclusive Care)
How to Become a Paid Caregiver for a Family Member: 6 Steps to Uncovering Financial Assistance Options for Family Caregivers (Angela Stringfellow, April 2020)
Where Family Caregivers Can Get Financial Assistance (Margie Zable Fisher, May 2020)
Scholarships and Financial Aid for Family Caregivers (Marsha Mercer, AARP)
Publications
Publications
Caregiving in the US 2020 (NAC and AARP, 2020)
Caregiver Care (Swartz and Collins, American Family Physician, 2019)
Population Characteristics and Needs of Informal Caregivers Associated With the Risk of Perceiving a High Burden: A Cross- Sectional Study (Prevo, KlaasJan, et.al., The Journal of Health Care Organization, Provision, and Financing, 2018)
A Call to Preventive Action by Health Care Providers and Policy Makers to Support Caregivers (Hoffman and Zucker, Prev Chronic Dis, 2016)
Caregiver Burden: A Clinical Review (Adelman, Lyubov, and Tmanova, JAMA, 2014)
Caregiving Burden, Stress, and Health Effects Among Family Caregivers of Adult Cancer Patients (Bevans and Sternberg, JAMA, 2012)
Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008) (Stajduhar, Funk, et.al, Palliative Medicine, 2010)
Sharing the Care: The Role of Family in Chronic Illness (Rosland, California HealthCare Foundation, 2009)
Supporting Family Caregivers in Providing Care – Patient Safety and Quality (Reinhard, Given, Petilick and Bemis, Agency for Healthcare Research and Quality, 2008)
Caring for the Most Vulnerable: Framing the Public Health of Caregiving (Talley and Crews, Am J Public Health, 2007.
Caring for family members with chronic physical illness: A critical review of caregiver literature (Lim and Zebrack; Health Qual Life Outcomes, 2004)
Estimating the Cost of Informal Caregiving for Elderly Patients With Cancer (Hayman, Langa, et.al., J Clinical Oncology, 2001)
Involvement in Caregiving and Adjustment to Death of a Spouse (Schultz, Beach, and Lind, JAMA, 2001)
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study (Schulz and Beach, PhD; JAMA, 1999)
Events
Events
Nov. 18, 2020, 8 pm EST: Special Film Screening and Discussion with the Producer/Director
About Us
About Us
This initiative was formed in collaboration with Dr. Jessica Zitter and the film, Caregiver: A Love Story.
Dr. Jessica Zitter – Producer/Director, Caregiver: A Love Story and Author, Extreme Measures: Finding a Better Path to the End of Life*
Dr. Eliza Chin – AMWA Executive Director
Emily Chen – AMWA Project Coordinator
Kayla Li – AMWA Assistant Director
Magda Wojtara & Brianna Fitzpatrick- AMWA Student Researchers
*As an Amazon Affiliate, AMWA earns a commission from qualifying purchases.
Related Initiative: SeniorFusion - Aging with the Ingenuity of Technology
*As an Amazon Affiliate, AMWA earns a commission from qualifying purchases.