Caring for the Caregiver

 
 

As the U.S. population continues to age, the caregiving burden will only continue to increase. At some point in their lives, many individuals will take on the role of caring for friends, family members, or others. For some, this may be in a professional capacity, and for others, an act of love. Launched in partnership with the film, Caregiver: A Love Story, this initiative will raise awareness, provide resources, and most importantly, sound a call to action for a growing public health issue — the importance of caring for the caregiver.

Caregiver: A Love Story

From 2020-2021, AMWA hosted a one-hour CME/CE Program (film + lecture) for physicians, nurses, and social workers. Learn how you can screen the film at your institution or hospital.

Award-winning film (Best Short Documentary, SF Jewish Film Festival 2020) by Dr. Jessica Zitter, (author of Extreme Measures: Finding a Better Path to the End of Life*). “Caregiver: A Love Story highlights an essential, yet largely unseen workforce–the family caregivers of America…When 59-year-old Bambi decides to forgo further treatment for her cancer and die at home her husband Rick leaves his job to beome her primary caregiver–a role for which he has no experience and little support.” Learn more about the film.

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Caregiver: A Love Story – Trailer from Jessica Zitter on Vimeo.

 

 


 

 

National Family Caregivers Month 2020

AMWA screening and discussion with Dr. Jessica Zitter

National Family Caregivers Month, November 2020

Caregiver: A Love Story

Event Supporters & Donors

 

Gold Level

Dr. Shahnaz Fatteh

Bronze Level

Dr. Karen Jerome
Dr. Laurel Waters & Jeanne Robertson
Drs. Eliza & Doug Chin

Friend

Dawn Wyllie, MD, MPH
Molly Mccormick
Dr. Julianne Dean
Amanda Coggin

Ally

Ellen Singer
Constance U. Battle, MD
Eveline Wu MFT
Kolby Miller
Dr. Theresa Rohr-Kirchgraber
Dr. Ora Pescovitz
Doug Mosher & Carla Din

Resources and Services

General Resources

General 

AARP Family Caregiving 

Administration for Community Living

Administration on Aging

Aging Care

Alzheimer’s Association

Alzheimers.gov 

American Health Care Association – National Center for Assisted Living 

AmeriCorps Seniors

ARCH National Respite Network and Resource Center 

Caregiver Action Network 

Caregiver Media Group – General information, magazine, resources, conference, newsletters

Caregiver Stress and Burnout (Help Guide)

Family Caregiving Alliance

Get Palliative Care 

LongTermCare.gov 

Memory Cafe Directory 

National Academy of Elder Law Attorneys 

National Adult Day Services Association 

National Alliance for Caregiving 

National Association of Home Builders- Certified Aging in Place Specialists

National Institutes on Aging 

RAND Corporation – Caregiving Initiative

Rosalynn Carter Institute

Senior Link

State Health Insurance Assistance Programs 

Well Spouse Association

Medicare Resources

Military Resources

Military Resources

Blue Star Caregivers (Caregivers: Helping Strong Families be Even Stronger)

Easter Seals: Military & Veteran Caregivers

Elizabeth Dole Foundation  (Caring for Military Families)

Getting to Know Military Caregivers and Their Needs  (RAND Solution)

Military Caregiver Support Resources (Caregivers Resources)

Military OneSource: Support for Military Personnel & Families (Part of Department of Defense’s Network of Support for the Military Community) 

Red Cross: Military and Veteran Caregiver Network 

VA Caregiver Support (U.S. Department of Veterans Affairs)

VA Family Caregiver Program  (Military.com)

VA Geriatrics and Extended Care (U.S. Department of Veterans Affairs)

Benefits and Funding

Publications

Publications

Caregiving in the US 2020 (NAC and AARP, 2020)

Caregiver Care (Swartz and Collins, American Family Physician, 2019) 

Population Characteristics and Needs of Informal Caregivers Associated With the Risk of Perceiving a High Burden: A Cross- Sectional Study (Prevo, KlaasJan, et.al., The Journal of Health Care Organization, Provision, and Financing, 2018)

A Call to Preventive Action by Health Care Providers and Policy Makers to Support Caregivers (Hoffman and Zucker, Prev Chronic Dis, 2016)

Caregiver Burden: A Clinical Review (Adelman, Lyubov, and Tmanova, JAMA, 2014)

Caregiving Burden, Stress, and Health Effects Among Family Caregivers of Adult Cancer Patients  (Bevans and Sternberg, JAMA, 2012)

Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008)  (Stajduhar, Funk, et.al, Palliative Medicine, 2010) 

Sharing the Care: The Role of Family in Chronic Illness (Rosland, California HealthCare Foundation, 2009)

Supporting Family Caregivers in Providing Care – Patient Safety and Quality  (Reinhard, Given, Petilick and Bemis, Agency for Healthcare Research and Quality, 2008)

Caring for the Most Vulnerable: Framing the Public Health of Caregiving (Talley and Crews, Am J Public Health, 2007.

Caring for family members with chronic physical illness: A critical review of caregiver literature (Lim and Zebrack; Health Qual Life Outcomes, 2004)

Estimating the Cost of Informal Caregiving for Elderly Patients With Cancer (Hayman, Langa, et.al., J Clinical Oncology, 2001)

Involvement in Caregiving and Adjustment to Death of a Spouse (Schultz, Beach, and Lind, JAMA, 2001)

Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study (Schulz and Beach, PhD; JAMA, 1999)

Events

Events

Nov. 18, 2020, 8 pm EST:  Special Film Screening and Discussion with the Producer/Director

About Us

About Us

This initiative was formed in collaboration with Dr. Jessica Zitter and the film, Caregiver: A Love Story.

Dr. Jessica Zitter – Producer/Director, Caregiver: A Love Story and Author, Extreme Measures: Finding a Better Path to the End of Life*
Dr. Eliza Chin – AMWA Executive Director
Emily Chen – AMWA Project Coordinator
Kayla Li – AMWA Assistant Director
Magda Wojtara & Brianna Fitzpatrick- AMWA Student Researchers

*As an Amazon Affiliate, AMWA earns a commission from qualifying purchases.

Related Initiative: SeniorFusion - Aging with the Ingenuity of Technology

*As an Amazon Affiliate, AMWA earns a commission from qualifying purchases.