As you know, the FDA announced its consideration of an Office of Patient Affairs to unify its patient engagement activities. In order for such an Office to truly work for patients, it is critical that the FDA understand patients’ needs and priorities. To that end, we are inviting you to participate in this survey to capture the perspectives of diverse patient organizations for submission to the FDA.
Every participant will receive a report of findings. If desired, your organization will also be listed on the FDA submission.
There is strength in numbers, and hearing from diverse organizations representing patients and caregivers across a broad spectrum of rare and common diseases will send a strong signal to the FDA: that patients’ perspectives are critically important. Please let the FDA know your views and take the 15-minute survey by clicking on this link: Rx4goodFDAsurvey
We also encourage you to forward this survey invitation to patient organizations in your network to ensure that as many divergent views as possible are heard. Thank you in advance for your participation!
President & Catalyst4good
Chief Patient Advocate
t: @heidisa / @rx4good